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Mischief Managed.
I solemnly swear that I am up to no good. #leakycon #leakycon2018
Y’all, check out my friend Baileys announcement!! I’m so excited for her and super pumped to watch this series she’s a part of! #Repost @catchingbreaths with @get_repost ・・・ The concept is simple: follow someone’s journey from surgery to stage. Showing the life of a mucus mutant. Showing the life of a bilingual Deaf family. Showing the life of a dancer and @companythreesixty dancers. It technically hits all the hashtags: #spoonie #deaf #adultballerina #bodypositive #chronicillness. It hopefully connects with many communities and provides another voice in the chorus of those wanting representation in media abound. It is positive: a positive network with a positive focus wanting to counter the negative swarmy troll farm that is most modern media to date. But... what if the concept becomes a reality? What if I show not just the recovery from latest rounds of surgeries... but the pain and swelling and funk between? What if I don’t fulfill some sort of diagnostic paradigm being that I am an Atypical diagnosis (and someone who hopes not to be defined by that anyways where I can)? What if we capture not just the invigorating process of putting together a show with women I ferociously admire and protect... but also, how totally messy dance life can be? What if we showcase a family that’s equal parts Deaf as hearing... yet our variable mix of signing, reading lips, caption and speech isn’t in keeping with what the world wants from us? Choosing to share our story has come with a lot of IFs... but we are braving it none the less. Although I can’t believe our pilot episode premiered TODAY and that I can finally announce the news... fear of judgement subsists. Can perspective, positivity and living an imperfect life as openly as possible actually be of benefit? The verdict is still out... but I’m excited to try. I’m excited to see. And I’m excited to get started.▪️Click Link In Bio To Watch The Pilot Or Go To:▪️#CatchingBreaths
The builders weren’t out today, so I decided to have one last hoorah in our still empty, hurricane Harvey-Ed house. They’ve finally begun repairs, and I’m super pumped for it to be fixed, but also a bit sad at the loss of the house as we knew it and how it was growing up. Here I’m in our game room, the red wall is my bathroom, and to the right is my old bedroom, where I was the night before the storm came. The bed I slept on had ceiling and insulation fallen on it the next day. Still pretty surreal almost a year out. TL;DR I love my new @sodancausa dance sneakers I got from @cinqdanceessentials ! Super pumped for the new year!
We had a guest teacher in class last night. I wrote a blog post about it! Link is in the bio. (Spoiler. It was wonderful.) Thank you so much, @linds779 for teaching us! (Ps. My shirt is from @balletlibrarian ‘s book Cantique, you can totally still get ya one. It’s my favorite, obviously.) PD: photo of me and Lindsi Dec from Pacific Northwest Ballet after class.
Once upon a time, my toes used to touch the floor.

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I had a blog written last week, but it didn’t save before I got a chance to post it. Bleh. 

There were classes this week, but I wasn’t able to go to them. There are classes this week, and then summer begins the next week. I’ll be teaching two classes on Saturdays, and hopefully getting to attend the adult classes twice a week. 

My body seems to be adjusting to the medicine I’m on, which is just for the repercussions from not having a gallbladder. It doesn’t fix everything, as I still get really tired, but it does help, as I’m not near as weak since I can actually eat food now. 

I’m hopeful that things will be okay. 

My future is uncertain. I hope to find out more st my follow up in August on whether this seems to be something that will last long term or if it’s something that could improve with time. Until then, I’m doing my best to take it easy when I can, yet still doing enough to make me feel like I’m more than just dead weight. 

I’ll try to get to classes in the fall, but can’t really gauge whether that will happen until I’m there. I will for sure be teaching. 

It’s funny; being an adult ballet dancer I often get asked, “how long are you going to keep up this whole ballet thing?” With a tone as though it is nothing more than a childhood dream. And I used to say “as long as I have feet, I’m going to dance.” I didn’t think that the thing threatening to take me out isn’t the fact that I have feet, but rather if I have the energy to make it. I never thought it would be a question because my body barely lets me get out of bed. In my head, my drive and passion was enough to make that certain. But now it’s not. Now the thing trying to snuff my dreams is completely out of my control, and the one thing that could actually do it. Without the energy to do it, you just can’t. There isn’t a way to work around it. I never saw this coming. 

Thankfully, all my big dreams have been accomplished. Thankfully, my doctor encourages me to go to class any chance I get. Thankfully I’m still able to go some times, even if it isn’t near as much as I’d like and even if I essentially have to hang up my pointe shoes. 

That’s okay. 

It’s hard to be on this side dreams, sometimes. But also invigorating. Knowing that I did it. 

Now, I’m sitting on my couch watching Harry Potter instead of in my house cleaning to try and get back into it after a terrible flea infestation. (Pier and beam in the country… the struggle is real.) 

Hope you all are well. Thanks for sticking with me! 

This entry was posted in dance.
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