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Mischief Managed.
I solemnly swear that I am up to no good. #leakycon #leakycon2018
Y’all, check out my friend Baileys announcement!! I’m so excited for her and super pumped to watch this series she’s a part of! #Repost @catchingbreaths with @get_repost ・・・ The concept is simple: follow someone’s journey from surgery to stage. Showing the life of a mucus mutant. Showing the life of a bilingual Deaf family. Showing the life of a dancer and @companythreesixty dancers. It technically hits all the hashtags: #spoonie #deaf #adultballerina #bodypositive #chronicillness. It hopefully connects with many communities and provides another voice in the chorus of those wanting representation in media abound. It is positive: a positive network with a positive focus wanting to counter the negative swarmy troll farm that is most modern media to date. But... what if the concept becomes a reality? What if I show not just the recovery from latest rounds of surgeries... but the pain and swelling and funk between? What if I don’t fulfill some sort of diagnostic paradigm being that I am an Atypical diagnosis (and someone who hopes not to be defined by that anyways where I can)? What if we capture not just the invigorating process of putting together a show with women I ferociously admire and protect... but also, how totally messy dance life can be? What if we showcase a family that’s equal parts Deaf as hearing... yet our variable mix of signing, reading lips, caption and speech isn’t in keeping with what the world wants from us? Choosing to share our story has come with a lot of IFs... but we are braving it none the less. Although I can’t believe our pilot episode premiered TODAY and that I can finally announce the news... fear of judgement subsists. Can perspective, positivity and living an imperfect life as openly as possible actually be of benefit? The verdict is still out... but I’m excited to try. I’m excited to see. And I’m excited to get started.▪️Click Link In Bio To Watch The Pilot Or Go To:▪️#CatchingBreaths
The builders weren’t out today, so I decided to have one last hoorah in our still empty, hurricane Harvey-Ed house. They’ve finally begun repairs, and I’m super pumped for it to be fixed, but also a bit sad at the loss of the house as we knew it and how it was growing up. Here I’m in our game room, the red wall is my bathroom, and to the right is my old bedroom, where I was the night before the storm came. The bed I slept on had ceiling and insulation fallen on it the next day. Still pretty surreal almost a year out. TL;DR I love my new @sodancausa dance sneakers I got from @cinqdanceessentials ! Super pumped for the new year!
We had a guest teacher in class last night. I wrote a blog post about it! Link is in the bio. (Spoiler. It was wonderful.) Thank you so much, @linds779 for teaching us! (Ps. My shirt is from @balletlibrarian ‘s book Cantique, you can totally still get ya one. It’s my favorite, obviously.) PD: photo of me and Lindsi Dec from Pacific Northwest Ballet after class.
Once upon a time, my toes used to touch the floor.

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Kids these days. 

I had my appointment with the surgeon for my back on Friday. It was a 2 1/2 hour drive up there and equally as long back. The surgeon spoke to me for ten minutes, where he told me how I was too young and my body could fix itself still and how if I were his sister i wouldn’t suggest having surgery. 

I was prepared for him to say no, to say I was too young, but it was the way he spoke to me that made me choke up and lose my words out of panic and frustration. It’s as though someone took an eraser and wiped out my brain and all the words I had prepared. Fear came in and reminded me how I pressed for a surgery before and where that got me—permanently on medication just to be able to eat and function like a normal person. He told me that he was on opinion and if I wanted to push for the surgery he’d do it, but he did not recommend it. 

I did ask him if I spoke to my referring doctor and he wanted me to pursue surgery, would I be able to come back. He said no bridges were burned and he’d definitely operate on me. That we would have another meeting like this, regroup, and then schedule the surgery. 

I had my chiropractor appointment where I upstated my doctor on everything that went down. I told him what was said. I told him how I was frustrated. I told him how I got in my car, called my general practitioner, and made an appointment to try and get a referral to a cardiologist and see what I need to do about a rheumatologist. I told him how symptoms that seem to point towards POTS have been getting more defined, and how the more I look into it, the more I wonder if that’s where this chronic fatigue is stemming from. I told him how I’m not convinced i don’t have hEDS, even if it’s not as extreme as some others. I told him how my cousin has POTS, and I’ve confirmed two more relatives to have symptoms like we have. I told him how I wondered if it’s all related and if so would surgery actually make it worse if it’s caused by something like one of these things or something similar. 

He got silent, face lined as one is when deep in thought. Said a few “hmm’s” as he mulled over everything in his knowledge base. Then he replied with, “I’m going to have to ponder on this one.” 

I appreciate this. I appreciate that he didn’t just shoot out an answer to pacify me. That he’s going to dig more into it before replying. That how these things could possibly all be connected is something to consider. How he believes me. He hears me out, weighs it against the science, and then responds. 

Brain fog has been the realest it’s ever been the last few days, and heading into the baby class today had me a little nervous. I love them so much and I was hopeful they would behave. 

Most did, but enough of them were distracted and talking that it made the class more difficult than it needed to be. A few even got on to the “sad face list” where if you get your name on this list and gets two marks beside it, you don’t get a sticker. It makes it difficult to have to repeat myself, to not have the whole class keeping up with what’s going on, to lose their focus and end up having to show the same thing numerous times. The class is big and we’re still trying to find what fully works for us. 

At the end of class, I had them sit down in their lines and I got real. 

I asked them if they wanted to know why it’s so important that they follow the rules. Besides what it does for them, if they wanted to know why it’s important to me. I told them, “I’m really sick. I have a thing called chronic fatigue syndrome, and it makes me really tired all the time. That feeling you get when you’re really tired at night and just want to go to bed is how I feel when I wake up in the morning and have to get through the day. I explained how teaching is hard but I love them and I love to teach them. I told them that when they follow the rules it doesn’t make me feel as tired, but when I have to get onto them over and over it makes me more tired and makes me feel worse. 

By this point, they were all silent. They were actually listening. Every one of them. And before I could even finish one of them, the sweet one I made cry a few weeks ago when her name got put on the sad face list for talking (and who wasn’t talking this time) ran up to me and just hugged me. Her precious little heart couldn’t take hearing about me being sick without doing what she could to make me feel better. One by one, other girls stood up and did the same, their hearts overflowing. By the end of it, we were in a giant, 20 person group hug, one of them commenting at the end, “Ms. Emilee! We broke rule number three we were all touching each other! That’s not keeping our hands to ourselves!” High five, little one. I explained that at that moment it was okay and allowed. 

I love these kids. These 5-6 year olds are full of life. They’re funny and charming. A good deal of them are really focused and work hard, many of them are naturals. It fills my heart to overflowing to see them remember things I’ve told them in weeks past, in their “ready position” at the beginning, smiles on their faces. It makes me melt when they come up and I think they have a question but they just want to give me a hug. These kids keep me as well as I am. They give me a reason to get out of bed and keep trying. They keep me in the studio even if I can’t really dance. 

I hope they know how important they are, how loved they are. I hope they know the world is theirs, that they can dream big and achieve those dreams. That sometimes life is hard, but if you look around there’s reminders of how it’s still beautiful. I hope coming to class is something they look forward to, something they enjoy. 

I love these kids and how they’re so full of life. They’re fresh, they see the world in the best way. Even if some of them have had the world hand them a hard deal, they don’t hate it. They find the beauty through the pain. They feel the pain. They process it. It’s admireable. And I hope as they grow they remember how wanted and loved they are, how important they are. How they have something to offer the world. How their story matters. 

They remind me of why I’m still here. Of what part of my purpose, my story, is. 

I could never thank them enough for that. 

This entry was posted in dance.

7 comments on “Kids these days. 

  1. The Accidental Artist says:

    Love your story, I can tell your students love you and I sincerely hope the doctors find some answers soon! It is good to have peace of mind but don’t the little ones confirm what is truly important in our lives? XOXO Sarah

    Liked by 1 person

    1. They truly do. I believe they’re the reason I don’t lose my mind over all of this. They keep me grounded.


  2. Shout out to your awesome chauffeur to SanAnt!

    Liked by 1 person

  3. ballet.tos says:

    Such a heartfelt snapshot of your life. ❤️ Since reading your post about you r father it was such an amazing piece. I love hearing from you. I hope you get well soon! All the love,

    Ps your students are incredible. 😉

    Liked by 1 person

    1. You are so incredibly kind. ❤ I love having you as a follower, I truly feel as if you are a friend. Thank you for that! I appreciate you so much!

      Liked by 1 person

      1. ballet.tos says:

        You are so welcome! I feel like you are a friend to me too!☺️ Have a good day. 🤗 Xx

        Liked by 1 person

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