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Emilee

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Mischief Managed.
I solemnly swear that I am up to no good. #leakycon #leakycon2018
Y’all, check out my friend Baileys announcement!! I’m so excited for her and super pumped to watch this series she’s a part of! #Repost @catchingbreaths with @get_repost ・・・ The concept is simple: follow someone’s journey from surgery to stage. Showing the life of a mucus mutant. Showing the life of a bilingual Deaf family. Showing the life of a dancer and @companythreesixty dancers. It technically hits all the hashtags: #spoonie #deaf #adultballerina #bodypositive #chronicillness. It hopefully connects with many communities and provides another voice in the chorus of those wanting representation in media abound. It is positive: a positive network with a positive focus wanting to counter the negative swarmy troll farm that is most modern media to date. But... what if the concept becomes a reality? What if I show not just the recovery from latest rounds of surgeries... but the pain and swelling and funk between? What if I don’t fulfill some sort of diagnostic paradigm being that I am an Atypical diagnosis (and someone who hopes not to be defined by that anyways where I can)? What if we capture not just the invigorating process of putting together a show with women I ferociously admire and protect... but also, how totally messy dance life can be? What if we showcase a family that’s equal parts Deaf as hearing... yet our variable mix of signing, reading lips, caption and speech isn’t in keeping with what the world wants from us? Choosing to share our story has come with a lot of IFs... but we are braving it none the less. Although I can’t believe our pilot episode premiered TODAY and that I can finally announce the news... fear of judgement subsists. Can perspective, positivity and living an imperfect life as openly as possible actually be of benefit? The verdict is still out... but I’m excited to try. I’m excited to see. And I’m excited to get started.▪️Click Link In Bio To Watch The Pilot Or Go To: onlygood.tv▪️#CatchingBreaths
The builders weren’t out today, so I decided to have one last hoorah in our still empty, hurricane Harvey-Ed house. They’ve finally begun repairs, and I’m super pumped for it to be fixed, but also a bit sad at the loss of the house as we knew it and how it was growing up. Here I’m in our game room, the red wall is my bathroom, and to the right is my old bedroom, where I was the night before the storm came. The bed I slept on had ceiling and insulation fallen on it the next day. Still pretty surreal almost a year out. TL;DR I love my new @sodancausa dance sneakers I got from @cinqdanceessentials ! Super pumped for the new year!
We had a guest teacher in class last night. I wrote a blog post about it! Link is in the bio. (Spoiler. It was wonderful.) Thank you so much, @linds779 for teaching us! (Ps. My shirt is from @balletlibrarian ‘s book Cantique, you can totally still get ya one. It’s my favorite, obviously.) PD: photo of me and Lindsi Dec from Pacific Northwest Ballet after class.
Once upon a time, my toes used to touch the floor.

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Skipped class. 

I skipped class tonight. 

It makes my heart so sad to not dance, and makes my muscles hurt since I did pointe for the first time in a while during rehearsal yesterday. The struggle. 

This week I mad a doctors appointment to try and figure out what’s making me so sick. I think part of what is making me feel so puny today is the packed weekend I had. We spent all (literally all) of Saturday at the Circuit of the Americas where Formula 1 was going on followed by Taylor Swift in concert. (The real reason I was there.) I was incredible beyond words and I met so many amazing people. Definitely a time for the books. 

It was about a 3.5 hour drive from me so I stayed with a friend who lived about 50 minutes away. I drove straight from there to rehearsal yesterday and didn’t get home until 9:30 last night. 

Apparently it was a bit too much for my body to handle. Yesterday was rough during rehearsal. I felt the most nauseated I’ve ever felt, which is saying something. But I powered through. More stubborn than anything. I hate missing rehearsals and I already had to miss Snow rehearsal on Saturday. 

I really feel I am over exerting myself, but I don’t really feel like I have a choice. I work because I need money. I dance for my sanity. I teach dance for both reasons above. So want options do I really have? 

I’ve been talking with my cousin who has also struggled with health issues and we’re both going in for various testing and stuff to try and get everything pin pointed. I’m nervous that doctors won’t believe me. I’m afraid that I’ll still “appear” too healthy to be taken seriously. It’s hard having people close to you not believe you that you feel so crappy or the time, or seem annoyed that you’re complaining again, or pass it off that you’re just lazy and trying to get out of something when it’s none of those things at all. There’s a guilt that sinks in that you can’t be better, a guilt for bringing them difficulty in having to deal with you. So you push through and try to be as normal as possible as much as you can so they won’t be inconvenienced. 

But does that even help at all? Or does it just make things worse? Does it do any good? Does it help your heart knowing that they aren’t upset or does it just make you less believeable because to them you seem fine? 

My cousin made a good point. Those that are well most of the time don’t know what it’s like to be sick most of the time. And having a diagnosis would help them to know that this is real, and help me know that I’m not crazy. But I’m also afraid that I won’t have what we’re testing for, putting me right back to where I started. 

But what if the diagnosis is nothing you can do anything for? Does that do any good? I’ve already gotten some skeptical eye brow raises to a few I’ve trusted with the possibility of what I’m facing. The emotions that come with all this can be overwhelming. And exhausting. 

So here I am, laying in bed, catching up on greys anatomy because even being productive is exhausting, trying not to be overwhelmed at everything I could be accomplishing with this skipped dance class. Also trying not to guilt trip myself about it all. 

Tomorrow is another day. Wednesday is a class I will take. If I don’t take care of myself, there will soon be no me to even have here to be productive or not. 

Such is life. 

Maybe one day it won’t be like this, but right now it is. So I just have to make the most of it. 

I find myself filled with overwhelming gratitude at the friends that have reached out to me to offer tips and help with all this health stuff. 

This weekend, be it exhausting and all, was good for my soul. I’m grateful. 

This entry was posted in dance.
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