search instagram arrow-down


Teaching on my birthday is my favorite thing. Hi, I’m 30, and I gave full sized cupcakes to three year olds and I’m sure their parents hate me
Hi, it’s been a minute, new blog post. Link in bio.
Gotta get back to Hogwarts Gotta get back to school Gotta get myself to Hogwarts Where everything is magicooooool
Mischief Managed.
I solemnly swear that I am up to no good. #leakycon #leakycon2018
Y’all, check out my friend Baileys announcement!! I’m so excited for her and super pumped to watch this series she’s a part of! #Repost @catchingbreaths with @get_repost ・・・ The concept is simple: follow someone’s journey from surgery to stage. Showing the life of a mucus mutant. Showing the life of a bilingual Deaf family. Showing the life of a dancer and @companythreesixty dancers. It technically hits all the hashtags: #spoonie #deaf #adultballerina #bodypositive #chronicillness. It hopefully connects with many communities and provides another voice in the chorus of those wanting representation in media abound. It is positive: a positive network with a positive focus wanting to counter the negative swarmy troll farm that is most modern media to date. But... what if the concept becomes a reality? What if I show not just the recovery from latest rounds of surgeries... but the pain and swelling and funk between? What if I don’t fulfill some sort of diagnostic paradigm being that I am an Atypical diagnosis (and someone who hopes not to be defined by that anyways where I can)? What if we capture not just the invigorating process of putting together a show with women I ferociously admire and protect... but also, how totally messy dance life can be? What if we showcase a family that’s equal parts Deaf as hearing... yet our variable mix of signing, reading lips, caption and speech isn’t in keeping with what the world wants from us? Choosing to share our story has come with a lot of IFs... but we are braving it none the less. Although I can’t believe our pilot episode premiered TODAY and that I can finally announce the news... fear of judgement subsists. Can perspective, positivity and living an imperfect life as openly as possible actually be of benefit? The verdict is still out... but I’m excited to try. I’m excited to see. And I’m excited to get started.▪️Click Link In Bio To Watch The Pilot Or Go To:▪️#CatchingBreaths

Recent Posts

Recent Comments

vtgem24 on Oh, hi.
anothernightatthebar… on It comes and goes in wave…
vtgem24 on It comes and goes in wave…
anothernightatthebar… on Kansas City Meet-Up
vtgem24 on Kansas City Meet-Up







I went to class on Wednesday. 

For the first time since probably march? Honestly I don’t remember the last time I was able to take a class. 

I remember the last class, though. It was Mrs Alex’s class, which is my favorite adult class. I remember feeling dizzy, and sick, and weak. I remember struggling. And I remember not being able to stay past barre because my body was too done. 

I have Fridays off again since tax season is over, so I stayed for class Wednesday since it was the last class of the year. 

I was exhausted, but I pushed through. 

As per usual, I was the best I’d been in a while. This happens any time I come back after being out, and I think I figured out why. I think it’s because I forget what hurts, so I don’t account for it, so I do everything so great. 

I definitely felt it the next morning. My knee was throbbing, my legs were sore, my ankle was angry. I was exhausted. 

I had my follow up appointment with my rheumatologist yesterday. I told her how I hadn’t been able to go to class since march or so because I was too exhausted. She was really concerned, especially since it has escalated so quickly. 

We talked through some things, got the lab results, and did some examining. She was curious as to whether my legs were actually two different lengths, or if it was something in my back. 

My left leg is 80 cm and my right is 81 cm. Which may not seem like much, but it really is. We’re not sure why my leg is shorter, but it is. So I’ll have to have the lift in my shoe for the rest of forever. Sweet. 😂

She was shocked by the extremity of my hypermobility, and i brought up ehlers danlos syndrome again. I showed her diagnostic sheet that the ehlers danlos website people had put out this week and all the things that were applicable to me. She gave be a verbal affirmation that I do have the hypermobility type of ehlers danlos syndrome. I’m excited because it’s finally something. I’ve been sick for 14 years, been seeing doctors for 9, and I have been trying like hell to try and convince people that it’s not all in my head. I’ve finally found doctors that agree that I am not okay and have been working with me to find answers. 

She said that having your gallbladder out can cause your body to have auto immune type symptoms. She prescribed me a medication to help with that. 

The bloodwork shows that I am a carrier of the mono gene, which has caused me to have chronic fatigue syndrome. I’ve never had mono, but I apparently have been exposed to someone with it, so my body has been fighting off the virus even though I’m not “sick with it.” That explains why I’m so freaking tired all the time. 

She agreed that shows are too much, but encouraged me to keep dancing as many classes as I can get there. She also told me to rest as much as humanly possible, which gives me an excuse to be an introvert #bless. But it sucks because I’m still trying to get my house back in order and scrubbed, and not being able to do much without being completely exhausted is annoying as heck. 

I’m currently writing this while laying on my floor, in pain from throwing out my back as well, trying to plot out what I can actually accomplish today with the energy I have left. 

Summer classes start in june, so I’m very excited at the prospect of getting back into class and getting home earlier. Hopefully it’s okay and I’m able to attend them without being too tired. And hopefully the medication I’ll be taking will help. 

This entry was posted in dance.

2 comments on “Diagnosis. 

  1. The Accidental Artist says:

    What an amazing story! You have so much strength to get to the bottom of your physical issues and still you are looking forward to June classes. Wow– typical dancer & I am impressed 🙂 Good luck on resting, getting back to regular classes and congrats on your new discoveries! XOXO Sarah

    Liked by 1 person

    1. Thank you so much! ❤❤


Leave a Reply
Your email address will not be published. Required fields are marked *

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: